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About Us 2018-06-01T11:28:10+00:00

The Charlie Gard Foundation aims to be the leading UK charity supporting children, adults and their families that have been affected by mitochondrial disease. We invest in pioneering research into viable treatments for mitochondrial diseases, and collaborate with professionals and experts from around the world to ensure we have every chance of finding that all elusive cure.

Mitochondrial diseases are life limiting, but we are here to make each precious moment count, and provide support and information for every step of your mito journey. We support families from the moment a diagnosis is received all the way to end-of-life care, and everything in between. We are here for you at every stage of your journey and recognise that memory making and family time is of the utmost importance, so we aim to provide an information hub for families affected by mito, but also for families that are touched by a life-limiting condition.

We collaborate with a variety of charities throughout the UK to ensure we offer the very best advice, support and services that are available to you. Whether you need information on medical equipment, household utensils, financial advice, respite holidays, treatment information, family photos, wish making or bereavement support – we have everything covered in one place.

If you would like to support our work, please visit our fundraising page for information on how you can help the families we work with, or if you think your family could benefit from our support please contact us to find out more.

Latest News

Launch Party

June 1st 2018 sees the official launch of The Charlie Gard Foundation, and we are all very excited! To ensure we included all of Charlie’s supporters in our celebration, we launched with a virtual party to make sure we could all celebrate Charlie’s legacy together, regardless of where our supporters are in the world.