What we Do 2018-06-01T11:27:43+01:00

The Charlie Gard Foundation has two main branches: research, and family support. We have contacts in several of the world’s leading hospitals working with mitochondrial related studies, all experts in their field of medicine. We appreciate that collaboration with experts in mitochondrial diseases, and related fields, is a must for us to achieve our goal of finding new and viable treatments, whilst also pursuing that all elusive cure. Working with professionals within the UK, Europe and America is essential for us to succeed in our objects and make the lives of mito sufferers more promising and fulfilling.

We’ll be investing in innovative and pioneering research that looks to deliver the most promising results, and will commit to a continual investment of funds for viable projects for the foreseeable future.

Research will be the key to battling mito, but this will take time, and until such a time that a cure is found, we will be there to support families and those affected by this devastating disease. Our support covers the ‘mito journey’ from beginning to end, from the moment you are touched by a mito diagnosis, to the final chapters of your story, we will be there to help make life comfortable, manageable and as fulfilling as possible.

To make life more comfortable we can assist with:

  • Specialist Medical Equipment
  • Essential Household Items
  • Treatment Grants

To make life more manageable we can assist with:

  • Financial Advice
  • Medical Information
  • Home Adaptions
  • Bereavement Support

To make life as fulfilling as possible we can assist with:

  • Respite Holidays
  • Theme Park Tickets
  • Family Photoshoots
  • Wish Making

If you would like to contact us about any of the above services, please fill out the contact form on our Apply for Assistance page and we will respond to you within 24 hours. Alternatively, if you have any questions about our services, then please do drop us an email at info@thecharliegardfoundation.org.

Latest News


Hugh Jackman: The Man. The Music. The Show – London O2 Box Hospitality for 2 with Gaucho Pre-Show Dinner, a night’s stay and up to £100 towards travel costs – Friday 7th June 2019

Butterfly Awards

On Saturday 27th October 2018 Connie and Chris attended a very special event called The Butterfly Awards. The inspirational ceremony and dinner brings together the champions and survivors of baby loss, and brings much needed

Mitochondrial Disease Awareness Week

Sunday 16th September 2018 marks the start of Mitochondrial Disease Awareness week, and to celebrate such an important date in the mito calendar we have are proud to launch Charlie’s Gifting Week too.