Sunday 16th September 2018 marks the start of Mitochondrial Disease Awareness week, and to celebrate such an important date in the mito calendar we have are proud to launch Charlie’s Gifting Week too.
A new law in memory of baby Charlie Gard was laid before Parliament last night in a bid to spare other families courtroom clashes with doctors.
June 1st 2018 sees the official launch of The Charlie Gard Foundation, and we are all very excited! To ensure we included all of Charlie’s supporters in our celebration, we launched with a virtual party to make sure we could all celebrate Charlie’s legacy together, regardless of where our supporters are in the world.
On December 15th 2017 Charlie's parents, Connie and Chris, met with Vice President Pence at the White House to express their personal thanks for President Trump's support during Charlie's campaign, and to discuss their visions and proposal for Charlie's Law.