Navigation:>Why Fundraise for Us?
Why Fundraise for Us? 2019-12-12T11:16:13+01:00

When it comes to fundraising, nothing is out of bounds. Whether you choose to hold a tea and cake morning with friends, or organise a grand gala event, your support is greatly valued. Below, you will find some inspiration for your fundraising ideas. Remember to choose something that you have a passion for as this will make the organisation (and participation) much more fun!

Why fundraise for us?

With so many worthy causes and charities out there, why would you choose to fundraise for the Charlie Gard Foundation? We hope that the video below can help you understand where we started, what we’ve done, and where we’d like to go.

Awareness for mitochondrial diseases is paramount for mito patients. Without awareness we won’t be able to raise the funds needed to invest in pioneering research, and to help support our families affected by a mitochondrial diagnosis. With more children dying of mitochondrial disease than childhood cancer, it’s evident that more needs to be done, and we can’t do that without your help.

We’ve spent the first year of the charity establishing the right connections, understanding what clients need, and deciding on the best way to move forward to better support mito patients and their families. We have a long-term vision to implement a variety of structures and support networks between patients, hospitals, doctors and specialists to ensure we deliver on our promise for a brighter, mito future, but to do this we need your help.

We are soon to invest in a three-year research project to help find better treatments for mito sufferers, and to pave the way for further research projects, but to do this we require more funding to ensure we can continue to commit to invest in further innovative, and potentially life changing, research. We also offer treatment grants and currently pay for children’s medicines to help give them a better quality of life. We want to continue to support children and families with these costs, but to do this we need to ensure we continue to raise vital funds, and that’s why we need your help.

Every day a child in the UK will be born and go on to be diagnosed with a mitochondrial disorder

1 in 2,000 people will face a diagnosis of mitochondrial disease

The first diagnosis of mitochondrial disease was in 1962, but research only began to take place within the last 20 years

1 in 10 people have a rare disease

Mitochondrial disease can cause symptoms in any organ at any age

Many diseases stem from mitochondria dysfunction, including Alzheimers, Parkinson’s, diabetes and autism

More needs to be done.

Mitochondrial sufferers feel they have no voice. We are here to be their voice and to support them on their mito journey through services and research. Will you help us to support these families and create a brighter, mito future because mito matters?

Where will your money go?

Every penny raised from fundraising will go towards supporting families affected by a mitochondrial diagnosis, or towards our research projects that are looking to develop better treatment plans for sufferers. Your money will be directly benefitting families and allow them to make memories, spend quality family time together, pay for treatment grants, purchase specialist medical equipment, and help fund home adaptions – all of which enable families to live with some normality, and for sufferers to have a much better quality of life. If you would like to know more about the families we help, and the support that we’ve given, please visit our How we can Help page for more information.

How can you help?

Charities Aid Foundation

Fundraising comes in all forms, and if you’re not able to participate in an event, then please consider joining one of our other donation avenues. If you would like to make a monthly contribution through your pay, then please consider Give as you Earn. It’s incredibly easy to join (you simply ask your employer to add you to the scheme, let them know who you want to support, how much you want to contribute, and that’s it!), and your employer may wish to match, or contribute, to your donation too. You can find more information about the Give as you Earn programme here: www.cafonline.org.

Give As You Live

If you do your grocery shopping online, then please register for Give as you Live, and we will receive a donation each time you place your order from shops such as Tesco, ASDA, Waitrose, and M&S, at no extra cost to you. Simply register and opt for The Charlie Gard Foundation as your chosen charity, and we’ll receive a donation each time you purchase from one of their retail stores. An average of £100 weekly spend could raise £100 a year for us, which is a fantastic contribution for simply doing your weekly shop. For more information on how to register, please visit their website here: www.giveasyoulive.com.

Amazon Smile

And for those of you who like to use Amazon on a regular basis, then please do register for an AmazonSmile account. Similar to the above option, you will be donating funds to our charity simply by doing your everyday shopping. For more information on how to register for AmazonSmile, please visit their website here: www.smile.amazon.co.uk.

The Charlie Gard Foundation Lottery

We also have our very own lottery, which is a great way to help raise funds for our fantastic cause whilst also having a spot of fun with the chance to win up to £25,000! You can play the lottery from just £1 a week, and 73p from every £1 goes directly to the foundation. Please visit our Lottery page for more details.

Money Boxes

We also have our wonderful money boxes for people who may wish to raise funds from the comfort of their own home! These cardboard boxes are a great way to be involved in raising funds in your own time without any commitment to attending or creating events. There’s no time limit to when your money box is to be filled, and you can keep reusing it for as long as you wish.

If you’d like to have a money box sent out to you, please do drop us an email at stephanie@thecharliegardfoundation.org.

Monkey Run

Maybe you have some Cheeky Monkeys that would like to get involved in a Charlie’s Cheeky Monkey Run? These events have proved incredibly popular over the last year as they can be done by any child, any where, at any time. Children can run these on their own, or as a group, and there’s no sign-up fee or minimum fundraising target.

It’s a very flexible and fun event to hold and if you’d like to know more about these events, please visit the Charlie’s Cheeky Monkey Run page for more information, or to sign up.

Charlie Gard Foundation Shop

Have you visited our shop? We have a variety of items from wristbands, keyrings, trolley coins and branded clothes to monkey Lego, framed family prints, handmade glass heart decor and, of course, our iconic plush Monkey.

All funds raised from the shop go directly towards the foundation, so you can treat yourself – or treat someone else – whilst kindly supporting our mito families.

Why not stay informed?

If you sign up to our Newsletter then you’ll be kept informed about all the latest updates on fundraising events currently in the pipeline. From firewalking, walking across the O2, or climbing Mount Everest – there isn’t anything our fundraisers won’t tackle, and we’re sure to have an event that suits you!

If you’d like to ask any questions about fundraising, please do drop us an email at fundraising@thecharliegardfoundation.org. If you’d like to download sponsorship forms, you can do so here.

And if you’re still looking for more inspiration for fundraising ideas, please visit our A-Z of fundraising below.

Latest News


Arm wrestle

Assault course




Bring and Buy

Baked bean bath

Bike ride

Bungee jump

Charlie’s Cheeky Monkey Run

Car boot sale

Coffee morning

Cake sale


Car wash

Dinner dance

Dress down day

Dog walking

Easter egg hunt

Eighties party

Egg and spoon race

Extreme sports

Fancy dress party

Film show

Fashion show


Fantasy football

Football match

Fight night

Golf day

Guess the number/weight/name

Give as you Live

Give as you Earn

House cleaning

Head shaving

Host a party

Hockey match

International evening

It’s a knockout

Inter-company sports match

Jumble sale

Jazz night


Knobbly knees competition

Line dancing competition

Ladies night

Lucky dip

Masquerade ball

Magic show

Murder mystery party

Matched giving for your employer

Mountain climb

No drinking/sweets/TV week

Nearly new sale

Name the …

Netball match

Odd jobs

One-day fast

Onion peel competition

Pub crawl


Poker tournament

Pool competition

Parachute jump

Quiz night

Quad bike racing


Race night



Run (half marathon/marathon)

Sweat box

Sponsored silence

Sponsored toddle


Salsa evening


Tea party

Treasure hunt

Tuck shop

Themed events

Underwater party

Uniform day

Variety show

Video night

Window cleaning

Wine tasting evening

Wheelbarrow racing


Wrestling match

Xbox tournament


Yoyo competition

Yodeling competition

Zombie party

Zodiac evening

Zany clothes day

Zumba day