When Kevin and Carla's daughter, Beibhínn, passed away earlier this year they vowed to spread more awareness for mitochondrial diseases in Ireland. "Our daughter, Beibhínn Hegarty Devine, fell asleep to mito in January 2019. Since
The Charlie Gard Foundation would like to proudly announce a research grant award to Dr.Caterina Garone. The research project aims to discover the mechanism responsible of clinical variability and tissues specificity of mitochondrial depletion disorders
Just one day after the second year anniversary of Charlie's passing, Charlie's parents, Connie and Chris, give an interview on Lorraine with Christine Lampard. In the two years since Charlie past, and whilst still grieving
To mark Charlie's angelversary on July 28th 2019, we have teamed up with the amazing Katie Lynn from Molten Wonky to create these beautiful bespoke hearts. These unique, blue love hearts make perfect keepsakes for those who have
On Sunday July 14th 2019 the Charlie Gard Foundation attended a charity Fun Run in Barnsley in aid of Daniel, who is currently fundraising for a specialist hydrotherapy pool. The Fun Run involved a one
Last week, Connie and Chris were back in Parliament again to discuss Charlie's Law with Bambos Charalambous MP. It's taken nearly two years of dedication, hard work and commitment from everyone involved in the Charlie's
Hope for Charlie's Law: Parents of 11-month-old Charlie Gard, who died in 2017, get backing for new rule to avoid families having to endure court hearing over children's hospital care By SAM GREENHILL CHIEF REPORTER
June 1st 2019 marked the Charlie Gard Foundation's first-year anniversary and we made sure we celebrated in the best possible way: by raising awareness and fundraising over the full weekend. On Saturday 1st June we
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